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Resources
Some useful sources of information
Administration on Intellectual and Developmental Disabilities (AIDD)
AIDD seeks to improve and increase services for individuals with developmental disabilities that promote independence and inclusion in society. This website contains information on AIDD’s programs and other helpful resources, such as a developmental disabilities program directory by state and grants and funding information.
American Academy of Pediatrics
The American Academy of Pediatrics comprises pediatricians committed to the health of infants, children, adolescents, and young adults. The website contains general information about children’s health, as well more specific information about guidelines, policies, and publications. This organization also hosts a website specifically for parents:
American Association on Intellectual and Developmental Disabilities (AAIDD)
The AAIDD is an interdisciplinary organization of professionals and citizens working to support individuals with disabilities by promoting policy, research, and practice.
Center for Parent Information and Resources (CPIR)
The CPIR serves as a central resource of information and products to the community of Parent Training Information Centers and the Community Parent Resource Centers, so that they can focus their efforts on serving families of children with disabilities.
Department of Education
The U.S. Department of Education (DOE) has resources to assist with the educational needs of children with developmental disabilities.
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The DOE’s Technical Assistance and Dissemination Network (TA&D Network)external icon links to a variety of other websites and online resources that focus on special education issues, such as policy, technology, curricula and parent trainings.
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The DOE’s Office of Special Education and Rehabilitative Services (OSERS)external icon provides support to parents and individuals, school districts, and states in three main areas:
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Special education: Office of Special Education Programs (OSEP)external icon
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Vocational rehabilitation: Rehabilitation Services Administration (RSA)external icon
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DisabilityMeasures.org
DisabilityMeasures.org is an online resource with measurement tools for assessment, screening, and research concerning individuals with disabilities.
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Diagnostic and Statistical Manual of Mental Disorders
The Diagnostic and Statistical Manual of Mental Disorders (DSM), published by the American Psychiatric Association, is the standard classification of mental disorders used by mental health professionals in the United States.
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Disability.gov
Disability.gov offers comprehensive information on disability programs and services in communities nationwide. The site links to more than 14,000 resources from federal, state, and local government agencies; academic institutions; and nonprofit organizations.
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First Signs
First Signs is dedicated to educating parents and professionals about early identification and intervention for children at risk for developmental delays and disorders, including autism.
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Insure Kids Now!
Each state provides no-cost or low-cost health insurance coverage for eligible children through Medicaid and the Children’s Health Insurance Program. This website has basic facts about these programs. It also has links to each state’s insurance program for children, where you can learn who is eligible for the programs, how to apply, and what services are covered. Information is available in English and Spanish.
MedlinePlus
MedlinePlus, a service of the U.S. National Library of Medicine and the National Institutes of Health, provides information on many different types of developmental disabilities, as well as resources on prevention and screening, research, statistics, law and policy, and more.
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My Child Without Limits
My Child Without Limits provides resources for families of young children from birth through 5 years of age with developmental delays or disabilities, as well as for professionals who work with these individuals. The site also has a national resource locator where visitors can find local service providers, community organizations, and government agencies.
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National Association of Councils on Developmental Disabilities (NACDD)
The NACDD supports state and territorial councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of individuals with disabilities and their families.
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National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
NIDILRR is a federal government grants-making agency that sponsors grantees to generate new disability and rehabilitation knowledge and promote its use and adoption.
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National Institutes of Health (NIH)
Several institutes within the NIH conduct and fund research about developmental disabilities.
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The Arc
The Arc is a national, community-based organization advocating for individuals with intellectual and developmental disabilities and their families through public policy and provision of supports and services.
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The International Classification of Diseases
The International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM) is the official system of codes for diagnoses and procedures in the United States.
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The State of the World’s Children 2013: Children with Disabilities
The 2013 edition of this report focuses on the situation of children with disabilities across the world.
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Links to websites related to autism spectrum disorder